Substâncias do cuidado na experiência familiar de adoecimento : subsídios para o cuidado profissional

Abstract

This study had as its theme the health care and it aims to understand some substances that compose in family experience of the situation of chronic illness, so that it subsidize the professional care. The comprehensive perspective led this study and demanded us a sensitive, attentive and open posture in front of familiar experiences encompassed by us, to understand their stories. The life story tried to unveil, under the point of view of the person and his family, the way how to respond and attach meanings to what happens throughout life; and, to obtain them we use matrix research databases of a search group and selected three of them. The approach, apprehension and interpretation of empirical material required great effort to interact with him, which was made by a process in which the indispensable resumed to empirical material we were at new heights in relationship to "enjoy it". In this process, we built some interpretive diagrams that enabled us to make three substantive elements of carepresented as empirical categories of this study and considered "care substances": a) recognition, understood as an attitude assumed on the events, in which the care provider undertakes to see the person who requires care as a subject in its otherness and singularity. Thus, recognizing the other enables people to mobilize to provide the necessary care; b) the space-time dimension and acts-attitudes of care, covered as ways to care for and to be/being with the other in the care in which we assume the modelling produced by family in their daily lives, taking this as a privileged space and time of provision of care, in addition to some actsvirtuous attitudes of care, throughout the illness experience, provided that care to happen; and, c) modes of weave care relations embracing accountability and sharing of care as attributes of the relationships that underpin the provision of care to another. We understand that professional care, if it is of these substances, may be the sustainer of the family, preserving and increasing their potential to care in the fight against chronic situation. While this claim may seem something simple to be achieved, this study showed a great difficulty of the subsystem of professional care to reach it, where we believe that understanding the care, presented here in its fullness and incompleteness, it can have for the multidimensionality of the needs of families, and may guide the practitioners in their practices. For that, the professional care should always be considered and taken as something in construction, a challenge, therefore, continuous in our practices.